Epilepsy Advocate
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Talk About Epilepsy

Sometimes, living with the secret of epilepsy can be harder than living with the condition itself. Open, honest communication is recommended for discussing epilepsy with others. Be it in the school, workplace, or softball field, epilepsy doesn’t have to be a dark secret anymore, and an open dialogue can be helpful to everyone.

Advocates Speak Out on Epilepsy

  • Victor A.

    "Show everyone that being diagnosed with epilepsy isn't the end of the world."

    >>View Victor's Bio

  • Kevin E.

    "Treat me like you normally would, like any other teenager."

    >>View Kevin's Bio

  • Greg G.

    "Talk about it with people. Find the resources."

    >>View Greg's Bio

  • Greg G.

    "Don't give up hope¿help is out there."

    >>View Greg's Bio

  • Greg G.

    "I don't stop talking about epilepsy, because it is so important."

    >>View Greg's Bio

  • John L.

    "I was diagnosed with epilepsy in 1965."

    >>View John's Bio

  • John D.

    "Talk about it. We're each other's teachers. It's being proactive and taking charge of our own lives but it's also reaching out to other people to help us as well."

    >>View John's Bio

  • Diane H.

    "We found that by being open, people would show compassion. We didn't give people a chance to show that compassion when we were keeping it a secret."

    >>View Diane's Bio

  • Carie W.

    "When I was diagnosed with epilepsy, I was 16 years old. I had a brand new car. I had no idea what to expect."

    >>View Carie's Bio

  • Carie W.

    "I was diagnosed in 2002."

    >>View Carie's Bio

  • Carie W.

    "When I came to . . . I knew something wasn't right."

    >>View Carie's Bio

  • Carie W.

    "I felt my hand jerk. I got in my car anyway. I actually stopped in the driveway to call my Mom. . . ."

    >>View Carie's Bio

  • Andrea H.

    "I've had epilepsy since I was 16 years old."

    >>View Andrea's Bio

  • Amy W.

    "I have to let people know my son has epilepsy. The best attitude to have is that it's no big deal."

    >>View Amy's Bio